ME/CFS referral information
Due to increasing demand, this service now focuses on diagnostic assessment and early management for patients who have not yet received a diagnosis or appropriate initial guidance. Routine long-term specialist follow-up is not available for all patients with established ME/CFS.
Patient triage
Priority is given to patients who are under 20 years of age, have been unwell for less than approximately six months, and have not yet received a confirmed diagnosis or specialist assessment. Patients outside these criteria may be considered where there is significant diagnostic uncertainty or another compelling clinical reason.
Purpose of referral
- Confirm or exclude ME/CFS
- Identify alternative diagnoses where appropriate
- Provide evidence-informed education
- Develop an initial pacing and symptom-management plan
Following assessment, patients will usually be discharged back to their GP with a comprehensive management plan. Further specialist review may be arranged where clinically indicated.
GP involvement is required
The patient must have an ongoing relationship with a New Zealand GP. Consultations take place via Telehealth, which creates practical and regulatory limits on prescribing. The usual GP remains responsible for ongoing general medical care, implementation of recommendations where appropriate, and most repeat prescribing.
Required before referral
- General physical examination since the start of illness
- CBC/diff, electrolytes, calcium/phosphate, CRP, TSH, LFT, renal panel and CK
- Iron studies, vitamin B12/folate and HbA1c
- Rheumatoid factor/anti-CCP, coeliac screening and urinalysis
- Further tests where clinically indicated
- Patient email address
Incomplete referrals may be returned for further information.
Referral details
- Email: refer@pinnaclesp.co.nz
- EDI: pinsport
- General enquiries: info@pinnaclesp.co.nz
- Phone: 03 662 9810
- Consultations take place via Telehealth
Clinical resources for providers
- CDC clinical overview
- NICE guideline on ME/CFS
- ME/CFS Primer for Clinical Practitioners
- Bateman Horne Center provider resources
- B12 injections information leaflet
- Low Dose Naltrexone (LDN) information leaflet
- Mestinon information leaflet
- 10-minute NASA Lean Test instructions
- M.E. Awareness NZ professional resources
